About the Sickle Cell Disorder National Education Programme
More information
These learning tools were developed in response to the All-Party Parliamentary Group (APPG) Report ‘No One’s Listening’, which followed an inquiry into the avoidable deaths and failures of care for sickle cell patients in secondary care. The report laid out recommendations to improve care, including the development of an elearning module based on national standards of care in partnership with clinical experts.
The Red Cell Network, as one of 10 Haemoglobinopathy Coordinating Centres for sickle cell disease (SCD) in England, has a primary function to provide high-quality training and education to healthcare professionals within its network of NHS Trusts.
The King’s Health Partner’s module was co-produced by adult and paediatric patients, carers, and staff across KCH and GSTT. It incorporates personal experiences and recommendations, helping staff understand what matters most in acute sickle cell admissions. Education, staff awareness and training are pivotal to these improvements and were key recommendations in the report. The topics covered in the training tool for acute sickle cell admissions are drawn directly from these recommendations.
Primary and secondary audiences
Primary: healthcare professionals.
Secondary: including, patients (expert patients for visibility and transparency), administrative managers in haematology, schoolteachers, social workers, prison workers.
Acknowledgements
The Red Cell Network
Christopher Dean, HCC Education Lead CNS, University College London Hospitals
Stuart McGunnigle, Network Manager, University College London Hospitals
Bernadette Hylton, HCC Education Matron, University College London Hospitals
Dr Martin Besser, HCC Deputy Clinical Lead, Cambridge University Hospitals
King’s Health Partners (Rachel Kesse-Adu, Consultant Haematologist, Guy’s & St Thomas Hospital)
Stephanie George, Sickle Cell Patient, Advocate & Speaker
NHSE
Kathy Brennan, Programme Lead for Haemoglobinopathies,
Dr Dianne Addei, Senior Public Health Advisor, National Healthcare Inequalities Improvement Programme
Meet the editorial team
Christopher Dean
HCC Education Lead Nurse, University College London Hospitals
Stuart McGunnigle
HCC Network Manager, University College London Hospitals
Stephanie George
Sickle Cell Patient, Advocate & Speaker
Rachel Kesse-Adu
Consultant Haematologist, Guy’s & St Thomas Hospital
NHSE TEL team members
Sarah Gray
Programme Manager - Technology Enhanced Learning, NHS England
Nicole Beckford
Senior Project Manager - Technology Enhanced Learning, NHS England
Runam Prasad
Lead Learning Designer - Technology Enhanced Learning, NHS England
Alan Campbell
Learning Designer - Technology Enhanced Learning, NHS England
Charlotte Howell
Learning Designer - Technology Enhanced Learning, NHS England
Evelyn Lindsay
Graphic Designer - Technology Enhanced Learning, NHS England
How to access
To access any elfh programme, you will need an elfh account. If you do not have one, then you can register by selecting the Register button below.
To view the Sickle Cell Disorder National Education Programme, select the View button below. If you already have an account with elfh, you will also be able to login and enrol on the programme from the View button.
If you already have an account with elfh, then you can enrol on to the Sickle Cell Disorder National Education Programme by logging in to the elfh Hub, selecting My Account > Enrolment and selecting the programme. You can then access the programme immediately in the My e-Learning section.
NHS healthcare staff in England – ESR
The Sickle Cell Disorder National Education Programme is also available to NHS healthcare staff via the Electronic Staff Record (ESR). Accessing this e-learning via ESR means that your completions will transfer with you throughout your NHS career.
Not an NHS organisation?
If you are not an NHS health or care organisation and therefore do not qualify for free access elfh Hub, you may be able to access the service by creating an OpenAthens account.
To check whether or not you qualify for free access via OpenAthens, you can view the eligibility criteria and register on the ‘OpenAthens’ portal.
Registering large numbers of users
If you are a HR, IT or Practice Manager and would like to register and enrol large numbers of staff within your organisation for access onto the Sickle Cell Disorder National Education Programme, please contact elfh directly.
Organisations wishing to use their own LMS
For HR departments wanting to know more about gaining access to courses using an existing Learning Management System please contact elfh directly to express interest.
More information
Please select the following link for more information on how to use the elfh Hub.
Select here for more information on the authorisations process to run reports on the learning activity of staff.
Select the following link for more information about CPD points.